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Factsheets   You can find information and advice about various aspects of HD in our factsheets.

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Displaying 10/13 resource summaries matching selection criteria

Advanced Directive to Refuse Medical Treatment

Added: Wed 13 Sep 2017

hdani.knib.app/hdani/documents/007202.pdf

A practical tool from Macmillan and the Public Health Agency to be considered in partnership with the Your Life, Your Choices booklet. If completed this form should be given to anyone who might be involved in your care like your GP, specialist nurse, NI Ambulance Service, family members, and should be brought on any hospital or respite admissions.

Your Checklist for Planning Ahead

Added: Wed 13 Sep 2017

hdani.knib.app/hdani/documents/007203.pdf

A practical tool from Macmillan and the Public Health Agency to help you discuss and record your thoughts on planning for your future.

Record of My Wishes

Added: Wed 13 Sep 2017

hdani.knib.app/hdani/documents/007204.pdf

A practical tool from Macmillan and the Public Health Agency to help you discuss and record your wishes about your future.

Your Life, Your Choices: Plan Ahead

Added: Wed 13 Sep 2017

hdani.knib.app/hdani/documents/007201.pdf

This booklet explains how you can plan ahead for your future care in Northern Ireland. It discusses creating an Enduring Power of Attorney, writing down how you'd like to be cared for in an Advance Care Plan and writing Advance Decisions to Refuse Treatment. It also has information about making a will, organ and tissue donation, and funeral planning. It was produced by Macmillan and the Public Health Agency.

Going into Hospital: Information for carers

Added: Tue 13 Jun 2017

hdani.knib.app/hdani/documents/007153.pdf

A HSC leaflet with information for carers when someone you care for needs to go into hospital.This is not HD specific.

HD: Seating, Equipment and Adaptations Factsheet

Added: Mon 24 Oct 2016   updated: Mon 27 Feb 2017

hdani.knib.app/hdani/documents/007023.pdf

Information and advice about home adaptations and equiptment to support everyday life for those with HD.

Behavioural Problems in Huntington’s Disease Factsheet

Added: Mon 24 Oct 2016   updated: Mon 27 Feb 2017

hdani.knib.app/hdani/documents/007021.pdf

A factsheet with information and advice about some of the psychological effects of HD that a person may experience.

HD: Issues with Eating and Swallowing Factsheet

Added: Mon 24 Oct 2016   updated: Mon 27 Feb 2017

hdani.knib.app/hdani/documents/007019.pdf

A guide to eating and swallowing issues which people with HD may experience.

HD: Diet Factsheet

Added: Mon 24 Oct 2016   updated: Mon 27 Feb 2017

hdani.knib.app/hdani/documents/007020.pdf

A factsheet dealing with HD and issues people might experience around nutrition.

HD: A carers factsheet

Added: Mon 24 Oct 2016   updated: Mon 27 Feb 2017

hdani.knib.app/hdani/documents/007018.pdf

Information for those caring for someone with HD

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